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Fibromyalgia Fights On
Warriors Wanted

Send us a message to register for Advocacy Day: Email us

On September 18th and 19th of 2019, fibromyalgia advocates, clinicians, caregivers and loved ones, will converge on Capitol Hill to connect with each other, and speak to their legislative representatives about supporting critical education programs, accessibility to alternative pain care, and encourage more fibromyalgia specific research that will accelerate the search for new treatments and improve the lives of patients affected by fibromyalgia.

No experience required! Training will take place on the 18th and through prior video chats. By attending, you’ll help us advance priorities in research, new fibromyalgia treatments, better-educating physicians who diagnose and treat the disease, and much more.  

This event is free to attend, but attendees will be responsible for their own travel arrangements. Everyone attending must be registered or they will be turned away from the meetings. We’ll be schedulings the meetings for you for that day. If you have further questions, don’t hesitate to ask.

Send us a message to register for Advocacy Day: Email us

#SupportFibro

Schedule
Advocacy Training

September 18, 2019
3pm – 7pm

Dinner will be provided
Busboys and Poets – Shirlington
4251 S. Campbell Ave,
Arlington, VA 22206

Advocacy Day

September 19, 2019
8:30 am
Legislative Meetings

Accommodations
Stay Near Us

Comfort Inn Pentagon City

2480 South Glebe Rd. Bldg. 2, Arlington, VA, 22206, US

Advocacy Matters

We sometimes forget that we do have the power to change things. A successful advocacy campaign is a joint effort that requires numerous people and tools to reach critical mass. Many people have become jaded about politics and advocacy, but participating in the process, allows your voice to be heard and makes a difference.

Congress represents us and works for us. We all ask for research and the cure, well Congress controls the power of the purse. If we want the NIH to do more research we must let our representatives know! Sixty-five percent of House Chiefs of Staff would rather get a request from a constituent for a meeting than from anyone else. It is very rare for a constituent not to be given a meeting with the Member or staff.

Advocacy is also about laying the groundwork for future years. On September 19th, we’ll educate legislators and staff on Fibromyalgia, build relationships for future actions, and begin a new phase of Advocacy Training for Fibromyalgia Advocates around the country!

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